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Kardiomyopathiewhen the heart muscle itself is affected.

Cardiomyopathy is a disease of the heart muscle itself, which may become stretched, thickened or stiff. Some forms run in families. Many people live full lives with the right treatment and follow-up.

At a glance

Often noticed as
Breathlessness, palpitations or a family history
Confirmed with
An echocardiogram, often a cardiac MRI
Aim of care
Protect the heart and prevent rhythm problems
Followed up in
Herzinsuffizienz-Sprechstunde

Symptoms

Symptoms vary from person to person, and some people have none. These are the most common.

  1. Breathlessness on exertion
  2. Palpitations
  3. Dizziness or fainting, especially on exertion
  4. Swollen ankles
  5. Chest pain
  6. No symptoms, found through family screening

Causes and risk factors

  • Inherited genes, in several forms
  • A previous viral infection of the heart
  • Alcohol and some chemotherapy drugs
  • Pregnancy (peripartum cardiomyopathy)
  • A fast heart rhythm over a long period
  • Often no cause is found

How it is diagnosed

The diagnosis starts with your history and an examination. These are the tests most often used to confirm it.

How it is managed

  1. Heart-protecting medicines

    Many of the medicines used for heart failure also help the heart muscle recover or stay stable.

  2. Rhythm monitoring

    Holter recordings look for rhythm problems, an important part of the risk assessment.

  3. Family screening

    When a form may be inherited, close relatives are offered an ECG and an echocardiogram.

  4. Specialist care, when needed

    Some people need a defibrillator or other specialist treatment, arranged by referral.

General information, not a treatment plan. Your treatment is decided with you after an assessment.

Get emergency help now if you have

Call emergency services or go to the nearest emergency department. Do not wait for a clinic appointment.

  • Fainting, especially during exercise
  • Chest pain or tightness
  • Severe or sudden breathlessness
  • A very fast heartbeat that does not settle

Common questions

Should my family be tested?

If the cardiomyopathy may be inherited, yes. Parents, brothers, sisters and children are usually offered an ECG and an echocardiogram.

Can I still exercise?

Most people can, but the safe level depends on the type. It is agreed with you after an assessment.

Will it get worse?

Not necessarily. Many forms stay stable for years with treatment, and some improve.

Other conditions

All conditions

Living with this, or worried you might be?

Book a consultation or send a question on WhatsApp. Your history, results and treatment are reviewed in person, and the plan is explained to you before you leave.

This page explains a condition in general terms. It cannot diagnose you or replace an examination, and it is not a treatment plan. Do not change or stop a medicine without talking to your doctor. If your symptoms are severe, sudden or happening now, seek emergency care immediately.

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